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Interdisciplinary Pediatric Palliative Care

Interdisciplinary Pediatric Palliative Care

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Interdisciplinary Pediatric Palliative Care provides a uniquely integrated, comprehensive resource about palliative care for seriously ill children and their families. The field of palliative care is based on the fundamental principle that an interdisciplinary team is optimal in caring for patients and their families throughout the illness trajectory. The text integrates themes including goals of care, discipline-specific roles, cultural and spiritual considerations,evidence-based outcomes, and far more. It emphasizes the value of words and high-quality communication in palliative care. Importantly, content acknowledges challenging periods between team members, and how those can ultimately benefit team, patient, and family care outcomes. Each chapter includes the perspectiveof the family of a seriously ill child in the form of a vignette to promote care team understanding of this crucial perspective. This second edition is founded on a wealth of evidence that reflects the innovations in pediatric palliative care science over the past 10 years, including initiatives in clinical care, research, and education. Interdisciplinary Pediatric Palliative Care is appropriate for all pediatric palliative clinicians (PPC), including physicians, nurses, psychosocialclinicians, chaplains, and many others. All subspecialists who deliver care to seriously ill children, will find this book a must-have for their work.Advance Praise for Interdisciplinary Pediatric Palliative Care, Second EditionThis new edition is as much a testament to pediatric palliative cares remarkable evolution as a field as it is a quintessential playbook for providing the high-quality holistic and compassionate care that families with seriously ill children desperately want. Every page thoughtfully weaves together how interprofessional teams can contribute collaboratively to learning about and supporting the preferences, needs and priorities of the precious patients and families in their circle of care. Itis a must read for all practitioners to enhance their palliative care understanding, appreciation and ability as a foundation for optimizing quality of life in practice. - Rebecca Kirch, JD, Executive Vice President of Policy and Programs, National Patient Advocate FoundationThis book offers a truly contemporary and comprehensive view of the entire field of pediatric palliative care. The focus on social determinants of health, cultural humility, and disparities in care could not be timelier, and the section highlighting conflict and conflict resolution should be required reading. The continued and purposeful inclusion of interdisciplinary clinicians in producing each chapter models the palliative care team itself-an approach in which all voices are necessary as weseek to provide the most compassionate care possible. - Rachel Thienprayoon, MD, MSCS, FAAP, FAAHPM, Associate Professor of Anesthesia, Medical Director, StarShine Hospice and Palliative Care, Cincinnati Childrens Hospital Medical Center
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hard cover
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216 x 279
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  • Section I Setting the Stage; Chapter 1 The Language of Pediatric Palliative Care; Joanne Wolfe, Pamela S. Hinds, and Barbara M. Sourkes; Chapter 2 The New and Changing Landscape of Children Receiving Pediatric Palliative Care in the US:: An Evidence Base Emerges; Bryan Sisk, Kimberley Widger, and Chris Feudtner; Chapter 3 Childrens Voices:: The Experience of Patients and Their Siblings; Anna C. Muriel, Abby R. Rosenberg, Barbara M. Sourkes; Chapter 4 Settings of Care; Moshe Cohn, Emily Johnston, and Julia McBee; Chapter 5 Cultural Humility, Social Determinants, and Disparities in Pediatric Palliative Care; Danielle Jonas, Alexis Morvant, and Sara Munoz-Blanco; Chapter 6 Program Development; Tammy I. Kang, Daniel P. Mahoney, Meaghann S. Weaver, and Stacy S. Remke; Chapter 7 Interdisciplinary Education and Training; Katharine E. Brock, Jennifer Hwang, Marsha Joselow, Blyth Lord, Janet Duncan, and Deborah A. Lafond; Chapter 8 Quality in Pediatric Palliative Care; Conrad Williams IV, Amanda L. Thompson, and Kathie Kobler; Section II Relationships and Communication; Chapter 9 Relationships with Children and Ensuring Their Voices in Decision-Making; Karen Ron-Li Liaw, Becky Lois, Julia McBee, and Erin Collins; Chapter 10 Family Experience and Relationships; Kim Mooney-Doyle, Meghan L. Marsac, Elissa G. Miller, Janet A. Deatrick, and Melissa A. Alderfer; Chapter 11 Team Relationships; Michelle R. Brown, Jody Chrastek, and Kris Catrine; Chapter 12 Witness to Suffering:: The Clinician Experience; Barbara M. Sourkes, Stephen Liben, and Danai Papadatou; Chapter 13 Practical Aspects of Palliative Care Communication; Lindsay Ragsdale, Tessie October, and Caitlin Scanlon; Chapter 14 Advance Care Planning Along the Care Continuum; Jonathan Mullin, Rachael Burgess, and Justin Baker; Chapter 15 Anticipatory Grief and Bereavement; Jennifer M. Snaman, Terrah Foster Akard, Sue E. Morris, and Lori Wiener; Chapter 16 Resolving Conflicts in Pediatric Palliative Care; Robert Macauley, Jody Chrastek, Amie Brandtjen, Harvey Cohen, and Thaddeus M. Pope; Section III Easing Suffering; Chapter 17 Psychological Symptoms; Chase Samsel, Kathleen Perko, Lori Wiener, and Maryland Pao; Chapter 18 Existential Distress and Suffering; Elisha Waldman and Mark Bartel; Chapter 19 Neurological Symptoms; Shih-Ning Liaw, Jenna E. Freitas, and Julie Hauer; Chapter 20 Pediatric Delirium in the Palliative Care Setting; Paula Tran, Jeffrey Moss, Eunice Koh, Katherine Ort, Richard J. Shaw, and Michelle Goldsmith; Chapter 21 Fatigue; Christina Ullrich, Shana Jacobs, and Pamela S. Hinds; Chapter 22 Sleep and Circadian Rhythms; Toluwalase A. Ajayi, Eric S. Zhou, and Valerie E. Rogers; Chapter 23 Prevention and Treatment of Pain in Children with Serious Illness; Stefan J. Friedrichsdorf, Lauren Heathcote, Michael Sangster, Donna Eull, and Amber Borucki; Chapter 24 Respiratory Symptoms; Rose Sharpe, Megan Jordan, Raymond Barfield, Sarah Gall, Margarita Bidegain, Kristen Lakis, Renee Bartle, and Emily Layok; Chapter 25 Gastrointestinal Symptoms; Kevin Madden and Margaret M. Mahon; Chapter 26 Dermatologic Conditions and Symptom Control; Kimberly A. Bower, Julie Good, Anke Reineke, Cristina Gordon, and Michele R. Burdette-Taylor; Chapter 27 Easing Distress When Death Is Near; Debra Lotstein and Rachel Rusch; Section IV Illness and Treatment Experience; Chapter 28 Prenatal and Neonatal Palliative Care; Christy Cummings, Anne Sullivan, Lauren Cramer, and Renee Boss; Chapter 29 Children with Complex Chronic Conditions; Jori Bogetz, Christopher A. Collura, and Christy Torkildson; Chapter 30 Advanced Heart Disease; Melissa K. Cousino, Chelsea Heneghan, and Elizabeth D. Blume; Chapter 31 Cystic Fibrosis and Other Childhood Lung Diseases; Elisabeth Potts Dellon, Jessica Goggin, and Elliot Rabinowitz; Chapter 32 Solid Organ Transplant; Timothy Klouda, Debra Boyer, Lynne Helfand, Michael McCown, Nicholas Purol, and Dawn Freiberger; Chapter 33 Oncological Illnesses; Sarah McCarthy, Kimberly A. Pyke-Grimm, and Angela M. Feraco; Chapter 34 Hematologic Symptoms; Barbara Speller-Brown, Jillian Campbell, Allistair Abraham, Priyal Patel, Lisa Humphrey, and Jennifer Webb; Chapter 35 Primary and Acquired Immune Deficiency Disorders; Wei Li Adeline Koay, Natella Rakhmanina, Megan Wilkins, Sarah Matthews, and Ami Doshi;
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