The first volume in the What Do I Do Now?:: Palliative Care series, Pediatric Palliative Care uses a case-based palliative care approach to cover common and important topics in the examination, investigation, and management of children with serious illness. Each chapter provides a discussion of the diagnosis, key points to remember, and selected references for further reading. The book addresses a wide range of topics, including the goals of care, symptom management, carefor neonatal and adolescent populations, and the emotional, social, cultural and spiritual needs of ill children and their families. Written by authors from a variety of fields such as nursing, chaplaincy, social work, and psychology, this book is suited for pediatricians, palliative care and hospiceproviders, nurses, and allied health practitioners. Pediatric Palliative Care is an engaging collection of thought-provoking cases which clinicians can utilize when they encounter difficult patients. The volume is also a self-assessment tool that tests the readers ability to answer the question, What do I do now?
1. Whose Decision Is This?; 2. Why is everyone giving up on our son?; 3. Will My Baby Learn to Walk?; 4. We are so glad she saw the beach; 5. Can you go change the familys mind?; 6. In the eye of the beholder; 7. You Cant Tell Him That!; 8. You cant stop the machines!; 9. I wont let you!; 10. Time to stop; 11. Is she dying?; 12. Stuck on Life Support; 13. How do we go back to work now?; 14. Always putting my needs last; 15. My Stomach Hurts; 16. No access and still in pain; 17. My skin feels like it is on fire; 18. The Withdrawn Child; 19. She Wont Stop Vomiting; 20. Cant catch my breath; 21. Why isnt she looking at me?; 22. The Lack of Movement; 23. Teenage Bleh; 25. My patient is twitching, could it be itching?; 26. Is my baby feeling hungry?; 27. Saying hello and goodbye; 28. I feel my baby moving, how is she incompatible with life?; 29. A moment becomes a memory; 30. Tiny fingers, tiny toes; 31. A case of refusing to agree; 32. I just want to feel normal!; 33. I need a refill.; 34. Theyre taking away her health insurance!; 35. The Unexpected Question; 36. A winding path; 37. Why is She So Distressed?; 38. Maximizing the time left;
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