In recent years it has become clear that cancer is a major health concern for people with an intellectual disability. In the general population it is estimated that one in four people will develop cancer and that more than half of those diagnosed will die from the disease. Recent research has revealed that cancer is not less frequent in people with an intellectual disability and some tumours are more common. This population has different risk factors for developing cancer and different needs for both medical and psychosocial care provision. Consequently, medical surveillance, diagnosis procedures and treatments often have to be modified to suit this population. This book presents and discusses research on topics such as adapted care for people with intellectual disability and cancer, general aspects of cancer surveillance, cancer in persons with Down syndrome and also cancer in persons with other syndromes.
Foreword; Introduction:: Cancer & intellectual disability; Communication, access & comfort; User participation is important for the creation of adapted cancer information material; Disclosure & information for people with intellectual disabilities who have cancer; Assessing pain in children with intellectual disability; Assessment of pain in adults with cognitive impairment; Anesthesia in children with intellectual disability; Perceptions of death among adults with intellectual disability; Thinking about death & dying; Palliative care to people with intellectual disabilities & cancer; Breast cancer surveillance; Cervical cancer surveillance; Testicular cancer; Cancer deaths in people with moderate to profound intellectual disabilities; Cancer mortality in Israel 1991-2005; Index.
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