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Palliative Care in Amyotrophic Lateral Sclerosis

Palliative Care in Amyotrophic Lateral Sclerosis

From Diagnosis to Bereavement

9780199686025
842.40 zł
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Description
Amytrophic Lateral Sclerosis (ALS or motor neurone disease) is a progressive neurodegenerative disease that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. Palliative Care in Amyotrophic Lateral Sclerosis:: From diagnosis to bereavement reflectsthe wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families. Case studies are used to emphasise the complexity of the care needs and involvement of the patient and family, culminating indiscussion of bereavement. Different models of care are explored, and this new edition utilizes the increase in both the evidence-base and available literature on the subject. New topics discussed include complementary therapies, personal and family experiences of ALS, new genetics research, and updated guidelines for patient care, to ensure this new edition remains the essential guide to palliative care in ALS.
Product Details
OUP Oxford
87365
9780199686025
9780199686025

Data sheet

Publication date
2014
Issue number
3
Cover
hard cover
Pages count
338
Dimensions (mm)
156 x 234
Weight (g)
716
  • Amyotrophic lateral sclerosis/motor neuron disease; Palliative care; Communication: Breaking the news; Decision making; Advance directives; Control of symptoms: Dyspnoea; Control of symptoms: Dysphagia; Control of symptoms: Cognitive dysfunction; Pain, psychological distress and other symptoms; Psychosocial care; Spiritual care; Multidisciplinary care: Physiotherapy; Multidisciplinary care: Occupational therapy; Interdisciplinary care: Speech and language therapy; Multidisciplinary care: Nursing care; Complementary and alternative medicine; Ethical issues; End of Life Care in Motor Neurone Disease; Bereavement; No time to waste: a familys journey from diagnosis to bereavement; Appendix: List of useful websites for ALS patients;
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