What is the role of activists and civil society in defining and defending the collective good in healthcare, especially in cases where that good seems to be heavily shaped by market dynamics? Presenting conceptual and empirical studies from a variety of healthcare contexts and theoretical perspectives, this book addresses this vital question by drawing together multidisciplinary scholarship from Science and Technology Studies, Sociology, Organisation Studies, Marketing, Philosophy,and Public Health. Healthcare has undergone three major changes over the past decades:: the advent of personalized medicine, the marketization of public care systems, and the digitalization of healthcare services. This book maps these changes and illustrates the extent to which they are interlinked to produce a seemingly unstoppable move toward individualization in healthcare. The book also highlights the tensions and challenges arising from these interlinkages, and traces how activists react to these tensions toargue for and defend the common good. It thus sketches a multifaceted picture of healthcare activism in the 21st century as civil society responds to these dynamics at the crossroads of markets and morals, economic and social justifications, individual and collective, and digital and non-digitalworlds. Crucially, it also highlights potential solutions for heightening patient voices and broadening participation in healthcare markets in a post Covid-19 world.
Healthcare Activism, Marketization, and the Collective Good; Preventing Exit, Eliciting Voice: Patient, Participant, and Public Involvement as Invited Activism in Precision Medicine and Genomics Initiatives; War on Diseases: Patient Organizations Problematization and Exploration of Market Issues; Please Dont Put a Price on Our Lives: Social Media and the Contestation of Value in Irelands Pricing of Orphan Drugs; Datafying the Patient Voice: The Making of Pervasive Infrastructures as Processes of Promise, Ruination, and Repair; Initiators, Controllers and Influencers: Enacting Patient Advocacy Roles in Cervical Cancer Screening Policy Practices; Heroes, Villains, and Victims: Tracing Breast Cancer Activist Movements; The Fantastical Empowered Patient; Markets, Morals, and the Collective Good after Covid-19;
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