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Researching Health Together: Engaging Patients and Stakeholders, From Topic Identification to Policy Change
9781544351063
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Description
The challenges of addressing health disparities, the ethical imperative to include stakeholders in research, and the slow translation of research evidence into practice are all driving a movement towards more community-based and participatory approaches to research. Researching Health Together brings together authors who have produced innovative methods or implemented projects focused on different stages of the research process, from question development to evaluation and translation. Editor Emily B. Zimmerman gathers exemplary new methods and projects into one place for the benefit of students designing research projects and proposals, those learning stakeholder-engaged methods, and those involved in implementing and funding stakeholder-engaged projects. Each chapter addresses:: how engagement was conceptualized, organized, and implemented; how engagement was evaluated; impacts on processes and outcomes of the project; and facilitators, barriers, and lessons learned. The book serves as a core textbook for courses in community-based health research at the graduate level.
Product Details
82691
9781544351063
9781544351063
Data sheet
- Publication date
- 2020
- Issue number
- 1
- Cover
- paperback
- Pages count
- 496
- Dimensions (mm)
- 203.20 x 254.00
- Weight (g)
- 1047
- Foreword - Joe V. Selby Acknowledgments About the Editor Introduction - Emily B. Zimmerman, Thomas W. Concannon Part I:: Stakeholder Engagement in Research Topic Identification and Modeling 1. Grassroots to Grasstops:: A Stepwise Approach to Identify Community Health Priorities - Ann M. Cheney, Christina M. Reaves, Mary Figueroa, Alejandra Cabral, Greer Sullivan 2. Deliberative Engagement of Communities in Decisions about Research Spending (DECIDERS) - Susan Dorr Goold, Zachary E. Rowe, Karen Calhoun 3. Group Model Building as a Community Engagement Strategy - Faustine Williams, Peter S. Hovmand, Kurt C. Stange 4. The SEED Method:: A Multi-level Stakeholder Approach to Research Question Development and Prioritization - Emily B. Zimmerman, Sarah K. Cook Part II:: Stakeholder Engagement in Research Design 5. The Community Engagement Studio:: Tapping Into the Lived Experience of Community Members to Enhance Research - Yvonne A. Joosten, Tiffany Israel, Leah Dunkel, Jacqueline Sims, Consuelo Hopkins Wilkins 6. The History of PCORnet - Kimberly Marschhauser, Claudia Grossmann, Maryan Zirkle 7. Partners, Not Participants:: Engaging Patients in the American BRCA Outcomes and Utilization of Testing (ABOUT) Network - Marleah Dean, Sue J. Friedman, Rebecca Sutphen, Beth Ann Bourquardez Clark, Debra Duquette, Lisa F. Rezende 8. Engagement Methods for Practice-Based Research Networks and the Challenges with Health Information Technology Implementation - Alex Krist, Paulette Lail Kashiri, J. Eric Peele, Gary Iwamoto, Colin Banas, Jon Puro Part III:: Implementing Stakeholder-Engaged Research 9. Free Range Humans:: Engaging Patients, Practices, Provides, and People on the High Plains - John M. Westfall, Linda Zittleman, Maret Felzien, High Plains Research Network (HPRN) Community Advisory Council 10. Engaging Stakeholders in Implementation of Evidence-Based Programs - Annette Boaz, Allison Metz 11. Communities Engaged and Advocating for Smoke-Free Environments (CEASE) - Payam Sheikhattari, Jummai Apata, Laurie Bezold, Lisa Bleich, Fernando A. Wagner 12. Translating Evidence to Policy:: A Case Study of the San Francisco Soda Tax - Roberto Vargas, Casey N. Palmer, James Rouse I?iguez, Paula Fleisher, Christina Goette, Brittni Chicuata, Sarah Campbell Fine, Eric Mar, Vanessa Bohm, Laura A. Schmidt Part IV:: Stakeholder Engagement in Health and Health Systems Interventions 13. Comparative Effectiveness Research:: Stakeholder Engagement for a Comprehensive Perspective - Kelly Williams, Tracy Carney, Jane Kogan, James Schuster 14. Achieving Patient Centered Health Care Innovation Through Stakeholder Engagement - L. Ebony Boulware, Patti L. Ephraim, Teri Browne, Tara Strigo, Felicia Hill-Briggs, Jamie Green, Chelsie Hauer 15. Community Engagement in an Urban AIAN Community to Address Diabetes Prevention - Lisa G. Rosas, Jan J. Vasquez, Jill Evans, Rhonda McClinton-Brown, Alberto Ojeda, Matilda Owaleon-Ojeda, Wayne Scott Waters, Robert E. Garcia 16. Boot Camp Translation - Linda Zittleman, Ashley Espinoza, John M. Westfall Part V:: Governance, Evaluation, And Ethics In Stakeholder-Engaged Research 17. Building the Proper Foundation:: Governance for Stakeholder-Engaged Research - Holly L. Peay, Elizabeth L. Cope, Elizabeth Horn, Madelaine E. Faulkner, Thomas W. Carton, Megan OBoyle, Lorraine B. Johnson 18. Evaluating Engagement:: Does the involvement of stakeholders improve research? - Thomas W. Concannon 19. Collaborating to Evaluate:: The Sí Texas Partnership-Centered Evaluation Model - Michelle K. Brodesky, Karen Errichetti, M. Marlen Ramirez, San Juana Martinez-Gomez, Stephanie Tapia, Lisa Wolff, Mary V. Davis 20. Ethics Considerations When Involving Patients as Partners in Health Research - Donald J. Willison, Michael McDonald Acronyms Glossary Index About the Contributors
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