This book represents a new turn in approaching dementia. It is a manifesto which sets out important principles about the nature of dementia both as a disease and as a disability and explores how a values-based, person-centred and rights-based approach can be applied to every aspect of the experience of dementia. Using vignettes, the book covers a variety of issues such as diagnosis, treatment, care, social attitudes, research, public policy and funding. It reflects the considerations of the patient and their carers as well as the perspectives of healthcare professionals, researchers and policy makers. The Dementia Manifesto promotes the concepts of values and disability rights, as well as the growing focus on creating an environment for people to live well with their condition. It will appeal to a range of clinicians, practitioners, academics and students from a variety of specialties.
1. Manifestos, dementia and values-based practice; 2. Enhancing values-based practice and developing a dementia manifesto; 3. The dementia manifesto; 4. Rights and values are everywhere in dementia!; 5. Reasoning about values; 6. Relationships - values and person-centred care; 7. Working together; 8. Scientifically speaking; 9. The science-driven principle and dementia; 10. The squeaky wheel principle; 11. Communication, end of life, and values; 12. Partnerships in decision-making.
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