Advocacy is a broad term that covers activities aimed at increasing attention, awareness, information, nursing, treatment, and support to improve the outcome of patients. These actions can be focused directly towards patients or indirectly via third parties. Although advocacy is present in all medical specialties, neurology in particular finds itself in need of strong advocacy tools as the diagnosis, treatment, long-term care and associated resource, and social issues have becomeincreasingly complex. While some physicians implicitly or explicitly act as advocates, there is a lack of holistic research in order to clarify the meaning of advocacy along with concrete methods and strategies.Advocacy in Neurology provides an integrated approach to the concept of advocacy in neurology. Structured in five sections, the book begins by explaining the term advocacy in general before elaborating on the areas of interest within neurology. The text goes on to offer concrete strategies and tools for clinicians to deploy advocacy in their daily work, and then discusses specific neurological diseases to point out and explain where advocacy is, or could be, beneficial. The book endswith an outlook, presentation of results, and an ending conclusion. Advocacy in Neurology offers a practical perspective on advocacy activities in neurology, aiming to show when and why they are important for neurology.
Section 1: What is advocacy?; What is advocacy?; Taking an epistemological perspective on advocacy; Advocacy in history and culture; Ethical issues in neurology; Physician, autonomy, and pharmaceutical industry; Advocacy, campaigning , lobbying: Good or bad?; Section 2: Why is advocacy needed?; Knowledge and science is not enough; Perspectives on advocacy of medical doctors; Advocacy and the perspective of (neurology) nursing; Patient and caregiver advocacy; Patient involvement in European cancer societies: The example of ECCO - the European CanCer Organization; Advocacy for neurology in migrants; Advocacy for neurology: Local, regional, national; Advocacy in the international arena; Working with others, the lesson of the European Brain Council; SOS childrens villages: Re-discovering advocacy to increase relevance and impact. A high level case study; Section 3: What tools can be used for advocacy?; Project management techniques for advocates; International advocacy: Case studies and lessons learnt; Using PR tools for advocacy; Section 4: Advocacy in different neurological diseases; Advocacy for stroke; Two decades of patient advocacy in Multiple Sclerosis: The success story of the European MS Platform; Advocacy in amyotrophic lateral sclerosis; Neuromuscular disorders and advocacy; Advocacy for movement disorders; Advocacy for brain tumours; Advocacy in dementia; Advocating for orphan diseases in neurology; Palliative care; Advocacy for epilepsy: From the shadows to centre stage: Stand up for epilepsy; Advocacy for patients with headache; Advocacy for patients with neuropathic pain; Section 5: Outlook, follow-up, results, ending, conclusion, and debriefing; Continuation or ending and debriefing; Results, outlook, and goals of this book;
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