The American Academy of Neurologys (AAN) Neurology Now Books series answer the questions and concerns of patients and caregivers with specific neurologic diseases who are navigating a host of issues related to living-often long-term-with a neurologic illness. Navigating Life with Parkinsons Disease is a guide for anyone affected by Parkinsons—patients, family members, friends, and caregivers. Containing the most up-to-date information on the disease, one of the most common nervous system diseases, it also discusses the available treatments and provides practical advice on how to manage the disease in the long term. Emphasizing life-style adjustments that will provide a better quality of life and moderate the burden for patients and theirloved ones, Navigating Life with Parkinsons Disease answers many questions and clarifies misunderstandings regarding the disease. While addressing all the relevant aspects of the disease, the authors do so in a manner that is approachable and easily understandable. Question and answer sections are provided, while hot topics are called out for easy visibility. The authors have also included true patient stories that will both inspire and instruct. The authors have also taken care to address several topics often not mentioned in physician-directed disease management, such as how to talk to family and friends about oneslife with Parkinsons; what role the care partner can play, and what is the best way to help a loved one without facing burnout. Promoting the patient-centered, multi- and multidisciplinary model of chronic disease management, Navigating Life with Parkinsons Disease empowers patients and their families with the necessary information to take charge of their health care.
INTRODUCTION; CHAPTER 1:: WHAT IS IT? WHY ME?; What is it?; What Causes Parkinson Disease?; What Are the Stages of the Disease?; Who Gets the Disease? Why Me?; Is There Help?; The Outlook for People with Parkinson Disease; CHAPTER 2:: THE MOTOR SYMPTOMS; Tremor; Bradykinesia; Rigidity; Loss of Balance, Freezing, and Falling; Other Motor Symptoms; Motor Symptoms That May Occur as a Complication of Treatment; CHAPTER 3:: THE NON-MOTOR SYMPTOMS; Sensory Symptoms; Cognitive Symptoms; CHAPTER 4:: DIAGNOSIS; CHAPTER 5:: HOW WILL MY LIFE CHANGE?; Reacting to the Diagnosis; Seeking More Information; Next Step; CHAPTER 6:: DISEASE MANAGEMENT:: GENERAL PRINCIPLES, MEDICATIONS, AND SURGERY; What Are Our Weapons in Treating Parkinson Disease?; What if I Dont Want to Start Medications Right Away?; Brain Surgery for Parkinson Disease; CHAPTER 7:: DISEASE MANAGEMENT:: REHABILITATION THERAPY, ASSISTIVE DEVICES, AND ADAPTIVE EQUIPMENT; Physical Therapy; Occupational Therapy; Speech Therapy; Assistive Devices and Adaptive Equipment; CHAPTER 8:: DISEASE MANAGEMENT:: SPECIFIC SYMPTOMS; Managing Tremor, Bradykinesia, and Rigidity; Managing Balance Challenges and Freezing of Gait; Managing Weakness and Fatigue; Managing Dyskinesia, Dystonia, and Wearing Off; Managing Speech and Communication Problems; Managing Excessive Salivation, Drooling, and Thick Secretions; Managing Swallowing Problems; Managing Vision Problems; Managing Difficulties with Bladder Control; Dealing With Loss of Mobility in the Advanced Stages; Dealing With Mild Cognitive Symptoms; Managing Confusion, Hallucinations, and Dementia; Dealing With Apathy, Depression, Impulsivity, and Anxiety; Managing Sleep Changes in Parkinson Disease; Managing Orthostatic Hypotension; Weight Loss; Keeping Skin in Shape; Hospitalization; Elective Surgery; Medications to Avoid; CHAPTER 9:: LIFESTYLE CHANGES AND DISEASE MANAGEMENT; The Importance of Exercise; Leisure Activities; Stress Management; Driving; Spirituality; Travel; Using Complementary Therapies; The Power of Music and Dance; Getting Involved in the Parkinson Community; CHAPTER 10:: RESEARCH; Why Should I Consider Participating in Research?; What Kinds of Research Studies May Be Open to a Person With Parkinson Disease?; The Informed Consent; Where Can I Learn More?; CHAPTER 11:: LEGAL AND FINANCIAL ISSUES; Advance Directives; Living Wills; HIPAA-What Information Do I Have Access to and How to Make the Most of It; Maintaining Tracking Information through Electronic Medical Records; ADA Issues; Financial Planning; CHAPTER 12:: THE CAREPARTNER; Coping With Caregiver Stress and Fatigue; Planning for the Future; CHAPTER 13:: COMMUNITY INVOLVEMENT, ADVOCACY, AND RESOURCES; A Passion for Advocacy; Find Out More; GLOSSARY;
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