Nearly twenty percent of Americans live today with some sort of disability, and this number will grow in coming decades as the population ages. Despite this, the U.S. health care system is not set up to provide care comfortably, safely, and efficiently to persons with disabilities. Individuals with disabilities can therefore face significant barriers to obtaining high quality health care. Some barriers result from obvious impediments, such as doors without automatic openers andexamining tables that are too high. Other barriers arise from faulty communication between patients and health care professionals, including misconceptions among clinicians about the daily lives, preferences, values, and abilities of persons with disabilities. Yet additional barriers relate tohealth insurance limits on items and services essential to maximizing health and independence. This book examines the health care experiences of persons who are blind, deaf, hard of hearing, or who have difficulties using their legs, arms or hands. The book then outlines strategies for overcoming or circumventing barriers to care, starting by just asking persons with disabilities about workable solutions. Creating safe and accessible health care for persons with disabilities will likelybenefit everyone at some point. This book has three parts. The first part looks at the historical roots of healthcare access for persons with disabilities in the United States. The second part discusses the current situation and the special challenges for those with disabilities. The third part looks forward to discuss the ways in which healthcare quality and access can improve.
Part 1: Setting the Stage: Disability and Access to Health Care in the United States; Roots of the Problem; Defining Disability; Health Insurance and Accessing the Health Care System; Part 2: Health Care Experiences of Persons with Disabilities; Finding Care; Getting Into and Around Health Care Settings; Challenges to Interpersonal Communication; Etiquette During Physical Examinations and Interactions with Office Staff; Clinical Competence and Technical Communication; Pushing Against Boundaries of the Health Care System; Part 3: Improving Health Care for Persons with Disabilities; Using Universal Design to Accommodate All; Self-Management and Advocacy; Improving Patient-Clinician Communication; Accessible Communication and Information; Designing Accessible Health Care Settings; The Internet and Information Technologies; Healthy and Accessible Communities; Appendix 1: Internet Resources Addressing General Disability and Health Care Topics; Appendix 2: Internet Resources Addressing Specific Disabilities, Diseases, and Disorders; Appendix 3: Suggestions for Improving Accessibility of Health Care Services;
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